Wednesday, February 5, 2014

Rare Disease Day is Coming Up!


Rare Disease Day was established to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Help me spread awareness about mastocytosis so maybe one day there will be a cure for it!  Go ahead and share this little blog post, pin it, share it on facebook, do whatever you can to help spread the word!



 Often times when we visit with doctors (especially those outside our usual visits) we are more knowledgeable about Titan's disease than they are.  It's very nerve racking to think they don't know what to do to help you! Often times I have to go in prepared and have a plan I'd like to try since they don't have a clue about triggers and what they do to his body.  I'm finding with this disease you always have to be prepared!

Rare Disease Day is February 28th so let's get this thing rolling and get people to notice Mastocytosis so maybe one day we can find a cure!



Thanks!
-erika

Tuesday, February 4, 2014

Snow Day!

  This winter has been full of snow days for us!  Around here snow days are fun days because daddy is a teacher/coach so we get the day off!  Yesterday we made sure to take some time and capture our fun play day!

We started off with this tiny little hill.....
Then decided it would be more fun to body sled.....
Little lady got her turn sledding too

 
Although she kinda enjoyed being cute better     

Little Man wanted to build a snowman so badly!  That's all he talked about coming home Sunday evening. We soon realized the snow wasn't really quite wet enough, that's when he decided it would be more fun just to wreck all our work.
 
 

After Titan quit on us we continued at our snowman attempt
 

This would be our result....
 

He thought throwing snowballs would be more fun
 

When dad gave him a snowball he got that look in his eyes like "mom this one is for you!"
 

Again...
 

And again...
 

Acadia tried to make herself some snowballs too
I'm pretty sure these are her "here's to you mom" eyes too!
Here's dad trying to teach her how to make a snow angel while she's clearly not happy about it
 

Titan figured it out



Somewhere along the line Titan thought it would be fun to be buried in snow, I'm sure dad thought that was fun too!


 





Hopefully if you got snow too you spent a little time outside having fun in it!  I'm grateful I have my little family and even more grateful that we can have little moments like this to cherish forever.

Enjoy!
-erika 


 





Monday, February 3, 2014

Found a Few More Common Triggers That Effect Us

After I had posted my brief findings of the cold medicines we were taking a fellow masto mom contacted me about a post on facebook I made about milk, it totally continued to us talking about our kiddos.  She directed me to mastokids.org to a list with Common Mast Cell Degranulation Triggers.

As stated in my earlier post I was giving him over the counter cold medicine for his little cough at night and other yucky congested symptoms.  That's when I read that Dextromethorphan: found in cough suppressant medications is a possible trigger. Great.  So no more cough suppressants at all even without alcohol.

Another thing I noticed that may have been causing our breakouts all week was Thiamine (vitamin B6):  found in vitamin supplements.  I have been giving him those gummy multi vitamins daily and pretty regularly the same week I noticed frequent breakouts.  Since I've found this info I've stopped giving them to him and the breakouts have decreased greatly.  I'm not sure if there's a vitamin supplement out there without that vitamin but if I find out I'll certainly make a blog post about it.


I'm adding screenshots of the triggers to avoid so that I can pin them to my Mastocytosis Board on Pinterest.







Enjoy!
-erika

Saturday, February 1, 2014

Another Sale to Share!

I opened my email to find Mpix was offering 25% off canvas gallery wraps! 

Now through February 5th, receive 25% off Gallery Wraps with promo code WRAPIT14. From your life to your walls, create a beautiful wall display for your home in a matter of minutes.
Our Gallery Wraps are handcrafted and wrapped around a wooden stretcher frame for a timeless decoration piece. Big or small, this sale applies to all sizes.
 

Just doing my part to share the wealth!

Enjoy!
-erika

Friday, January 31, 2014

I need help deciding on a new blog header!


So I've come up with both of these blog headers but I need some help getting things updated around here!  This is my current blog header which I would just swap out old photos for new ones and also change Dotson's to Dotsons.  


 

Or my other option is this:
 

I'm curious to hear your thoughts!  Please leave a comment with your opinion!

Enjoy!
-erika
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